Monday, March 16, 2009
What's been going on
So I've kept myself busy since I last posted a blog, so let me catch you up. Since Senia's had her trac she's gone to the hospital twice but it was only out of concern from me, I get freaked really fast w/ her know. She's gained a lot of weight, she's know 21lbs. I can barely hold her anymore, it doesn't bother her thought she'd rather be rolling around on the floor anyways. We had to have a swallow study done to see if what she was taking in by mouth was going down the right pipe, unfortunatley it was going down the wrong one so she'll have to have some intensive therapy to get her muscles stronger to keep food and liquids from going in her lungs. I was really upset because she really wants to eat food already she kept opening her mouth for more but she was coughing to much we had to stop. But I know w/ faith, prayer, and therapy she'll be eating up all of Javi's food too. As for us we're doing good, my insomnia has gotten worst but I'm to afraid to take anything for it. Eddie just started playing soccer again w/ a league at his work, he gets so excited about playing to bad his teammates either suck or are ball hogs I hate that. Javi's doing better he's finally getting his words out more clearly, but he still needs work. He loves being in his early start program, I just hate that he'll have to go to a different place once he turns 3. We've been trying to get him back into his bed, he's been sleeping w/ us in our bed and I hate it I need my space, so that is our task this week, try to get him to sleep in his room again, we're not quiet sure why he started sleeping w/ us, or why he doesn't even like going into his room anymore, but I hope we can get the task done. Other than that all is well.
Sunday, February 8, 2009
Getting Back To Things
So we finally got home after a long stay in the hospital, but after just a week I found myself driving her back to the emergency room at 5 am. She was had a virus but because she had such thick secretions they decided to go ahead and keep her. She's been doing well ever since, and of course I have our Heavenly God for that. Having her has really opened my eyes to how much God is really there for us, it truly is a blessing and I'm so happy that I have decided to change for the better. I know that I've done a lot in my past that I'm not proud of and don't get me wrong I know that there were also some things that I would really like to take back but when I think about it I don't regret anything I've ever done it brought me here and it has made me the person I am now. I'm glad that my life has turned out the way that it did. There aren't that many people that can say that even w/ all the things that have gone wrong in their lives they can still wake up w/ a smile on there face, happy to see that God has truly blessed you and your family. If anyone from my past were to ever read this they would probably be really surprised at how much I'm into church now and how much I've changed, I no longer judge people or care about what people think about me the only person I'm concerned about now a days is God and my family.
Monday, February 2, 2009
My Fragrance
I wrote this fragrance for the members of my church, we do this to try to encourage eachother to keep on believing that God will help you out any situation or struggle that you may be going through.
First and foremost I want to give Father and Mother all honor, praise and glory for coming in these last days and chosing us as the ones to recieve this message in the last days. I wanted to give this fragrance mainly for the new brothers and sisters that just recently got baptized and for the those of you that feel that you are going through any hardships or pursecutions. So my beautiful daughter Yesenia, she's been in the hospital for a little over 5wks, about 6wks ago she stopped breathing on me while we were at home. Her breathing had been a concern of mine for quiet some time and had gone to go see the doctor that Tuesday. He decided that a sleep study needed to be done. I became very thankful, because at this point I had lost a lot of sleep. I had become to afraid to sleep at night because I was so afraid that what she had done that day would happen at night and then I would have to wake up to only God knows. We had already taken CPR because of my son Javi, but I was in such a panic that I forgot to do mouth to mouth, I just remember grabbing her, my phone, and running outside of my complex and yelling for someone to please help me while I tried to dial 911. Now this is where Father and Mother truly showed me and hopefully you as well that they are truly watching over us. Out of all the neighbors I have the 2 that responeded were the ones she and I needed the most. Now mind you this was during the day when most people are at work. The guy that lives above me is a firefighter and he usually works during the day, but that day he had the day off, so he ran downstairs grabbed her and began mouth to mouth and got her to start breathing again. While he was doing this I was trying
to dial 911, but I was trying to give him information at the same time, thankfully another woman who lives in my complex was walking her dog, and she grabbed my phone made the phone call, she was a 911 dispatcher so she new the routine. If I didn't believe that Father and Mother were always with us I do now, I always believed that God put people in our paths for a reason and this truly assured me that I was right, these people saved my little girls life. So now we're off to the hospital, during her stay there they tried different procedures to try to figure out what could be done to keep her from pausing at night, unfortunately nothing worked and so surgery was our last option. I was really against it at first only because I'm really nervous about a trac, but once I realized that it was the best thing for my daughter and her health I had to do what was right for her. She ended up getting a tracestomy done and the recovery time for that kind of surgery on children is about 2wks, but just a few days before her surgery I needed some serious guidance, so I went to Pastor, I had begun to question the fate of my baby girl, she's been in and out of the hospital since March of last year and she has missed a lot of Sabbaths and appointed feasts of God, so I had a choice I could stay with her in the hospital and miss out on Gods days or I could go to Zion where I could receive the message of God and pray earnestly for the well being of my Senia. Knowing that Father and Mother would be watching over I chose to be in Zion with my brothers and sisters, and after talking to Pastor he assured me that Father and Mother know all of their childrens situations and by us being there not only were we receiving blessing but she was also receiving her blessings through us. After this watching her progress and seeing how fast she was healing I knew that I had made the right choice, after every procedure she has had, she has shown me that no matter what God has planned for we will always come out strong and more faithful in the end. So brothers and sisters we should never doubt, regardless of what daily struggles we may encounter, we should always put our faith in God, because when we do they show us how much they truly love us and care and for us. She is my example of that everyday, she is such a strong little girl and whenever she smiles she brightens up any room we are in. So believe in God and all that they can do for us. God Bless You!!!!
First and foremost I want to give Father and Mother all honor, praise and glory for coming in these last days and chosing us as the ones to recieve this message in the last days. I wanted to give this fragrance mainly for the new brothers and sisters that just recently got baptized and for the those of you that feel that you are going through any hardships or pursecutions. So my beautiful daughter Yesenia, she's been in the hospital for a little over 5wks, about 6wks ago she stopped breathing on me while we were at home. Her breathing had been a concern of mine for quiet some time and had gone to go see the doctor that Tuesday. He decided that a sleep study needed to be done. I became very thankful, because at this point I had lost a lot of sleep. I had become to afraid to sleep at night because I was so afraid that what she had done that day would happen at night and then I would have to wake up to only God knows. We had already taken CPR because of my son Javi, but I was in such a panic that I forgot to do mouth to mouth, I just remember grabbing her, my phone, and running outside of my complex and yelling for someone to please help me while I tried to dial 911. Now this is where Father and Mother truly showed me and hopefully you as well that they are truly watching over us. Out of all the neighbors I have the 2 that responeded were the ones she and I needed the most. Now mind you this was during the day when most people are at work. The guy that lives above me is a firefighter and he usually works during the day, but that day he had the day off, so he ran downstairs grabbed her and began mouth to mouth and got her to start breathing again. While he was doing this I was trying
to dial 911, but I was trying to give him information at the same time, thankfully another woman who lives in my complex was walking her dog, and she grabbed my phone made the phone call, she was a 911 dispatcher so she new the routine. If I didn't believe that Father and Mother were always with us I do now, I always believed that God put people in our paths for a reason and this truly assured me that I was right, these people saved my little girls life. So now we're off to the hospital, during her stay there they tried different procedures to try to figure out what could be done to keep her from pausing at night, unfortunately nothing worked and so surgery was our last option. I was really against it at first only because I'm really nervous about a trac, but once I realized that it was the best thing for my daughter and her health I had to do what was right for her. She ended up getting a tracestomy done and the recovery time for that kind of surgery on children is about 2wks, but just a few days before her surgery I needed some serious guidance, so I went to Pastor, I had begun to question the fate of my baby girl, she's been in and out of the hospital since March of last year and she has missed a lot of Sabbaths and appointed feasts of God, so I had a choice I could stay with her in the hospital and miss out on Gods days or I could go to Zion where I could receive the message of God and pray earnestly for the well being of my Senia. Knowing that Father and Mother would be watching over I chose to be in Zion with my brothers and sisters, and after talking to Pastor he assured me that Father and Mother know all of their childrens situations and by us being there not only were we receiving blessing but she was also receiving her blessings through us. After this watching her progress and seeing how fast she was healing I knew that I had made the right choice, after every procedure she has had, she has shown me that no matter what God has planned for we will always come out strong and more faithful in the end. So brothers and sisters we should never doubt, regardless of what daily struggles we may encounter, we should always put our faith in God, because when we do they show us how much they truly love us and care and for us. She is my example of that everyday, she is such a strong little girl and whenever she smiles she brightens up any room we are in. So believe in God and all that they can do for us. God Bless You!!!!
Thursday, January 22, 2009
Trac Business
So we've entered and have left the 5wk of Senia's hospital stay, and she's doing really good. Eddie and I have changed out the trac at least once each so we still have 1 more to go and then we'll have to do an 8 hour session where we take care of her on our own w/o assistance from any of the nurses, its to make sure that we'll be able to do everything on our own once we're home, and then she'll be able to come home. YEAH!!!! I'm so ready. Since I was last on our new President was inagurated into the white house, while me and eddie were sitting home and watching it we were in such amazment that we were able to be here experiencing what a 
change we are going through. I mean who else would have ever thought that they would live to see the day an african american man would be president of the United States. We tried to have Javi watch it but he was having none of it, he'd rather watch his Diego. While I was sitting there I kept thinking, what a change this will be not only for our country but even the other countries were watching. I think that this is a good change, God only knows that I need some good change in my life right now. Well its off to the hospital I go.
change we are going through. I mean who else would have ever thought that they would live to see the day an african american man would be president of the United States. We tried to have Javi watch it but he was having none of it, he'd rather watch his Diego. While I was sitting there I kept thinking, what a change this will be not only for our country but even the other countries were watching. I think that this is a good change, God only knows that I need some good change in my life right now. Well its off to the hospital I go.
Thursday, January 15, 2009
Here's to new beginnings
So I've decided to blog about what is going on in the life of my family and I. Let me start out by saying thanks for taking the time to come by and read my blog, I hope that whatever you get out of what I'm writing it may bring you comfort. Well I'm 28 yrs old, I've been married for 3yrs now, but we've been together going on 6yrs. My husband is in the U.S Navy currently stationed at Point Loma, he has served over 12yrs now and I'm hoping that he will retire at his 20yr mark. He works hard and is more than what I could have asked for in a husband, he provides for me and my kids, and he tries to give us whatever we need. I thank God for bringing him into my life and allowing us to grow together, he is my ROCK. We have to beautiful kids our 1st was Javier Eduardo he goes by Javi he's 2yrs old he was born premature but you would never know it 
looking at him now. He's very energetic, loves to be outside, and loves his cartoons, he's currently into Dora and Diego. He's definitely a mama's boy and doesn't really like to get dirty, which of course is my fault. But all around he's a really good kid he hardly ever acts up unless his sleepy or hungry, and his is the best big brother a sister could ask for. God truly has blessed me with a wonderful little boy, and if you have ever been around him his smile could melt your heart, and he only will welcome you if you have a open heart. He's very humble, if you take a toy away from him, he'll usually shrug it off and go and find another,. He does not tolerate bully's very, if you push him once he's very good about just walking away, so unlike his mother was along time ago. He has a big heart a beautiful smile, and loves to be around family. Our second child is Yesenia Araceli, but she goes by Lady, she's 14 mon old and she truly is a miracle from God. She was born with a head condition which she will have to undergo several operations to correct the shape of her head, but due to this condition she also has a different anatomy than ours. To date she has had 5 major surgeries and 1 minor one, she proves to me time and time again that you can overcome anything as long as you keep your faith in God, stay strong and keep a smile on your face. It is because of her I felt I needed to write this blog, for me personally its hard to put into words what I feel inside when it comes to her and all that she has going on. I know that there are several other families out there that are going through the same thing but I have yet to find anything that shows the progress of their child w/ pictures. When we first found that she had Craniosynistosis 
Cloverleaf w/ Pfeffier Syndrome, I didn't know what to think, mainly because I had never heard about it, so of course like any parent I took what the Dr's said for what it was but began to search for what it is. To give you a bit of what I now know this condition is a genetic condition, there are several types of it, it may run in your family, it may have been caused by medical things, or like my daughter it could have just been a gene that mutated while she was in the womb. Some Dr's can diagnose your baby while your pregnant w/ ultrasounds and others not until your child is a little older, again just depending on your childs case. Unfortunately the hospital I was going to at the time gave me an ultrasound very early in my pregnancy so the measurements she took didn't show any signs of problems. Now even if they would have caught it while I was still pregnant there is nothing you can do to prevent it, so the next question for me was " What's next?". I was told that she would have to undergo Cranial surgery, possibly eye surgery, and in the event that she begins to have problems she may have to have a tracestomy. Fortunately I was referred to the best Dr's I could have asked for, and the hospital that she receives all of her care is the best hospital I could have dreamed of. Since the very first Dr's appointment til now not only has my daughter received the best care, but they have treated us very well also. Now I know most of you would stay at the hospital 24/7 and I did at first, but I realized that by doing that I was not only wearing myself out, I was neglecting my son and my husband at home. Her first surgery was in March and after just 2wks I had to take her back in due to an infection near her incision sight, we ended up having to stay there for 8wks. The infection was so bad underneath her skin that it had gone down into the bone of her skull, but on the outside it only looked like she had a small scrap that had scabbed up. They had to go back in and clean out the infection and from there it felt like it was never going to get better. After this procedure she started to retain spinal fluid in her head which caused it to swell up, so she had to have a VP Schunt placed, this is a small tube that connects from her head down into her stomach so that she can dispose of it that way, then she decided she no longer wanted to take the bottle to eat like she used to, which caused her to start losing weight. They then diagnosed her as failure to thrive, which prompted the next surgery, she then had a G-Tube placement and a Fundoplication, so now her meals will be feed to her through this tube. Now if you have any questions about any of this so far please feel free to post it, I will be more than happy to explain anything I can. 
So she was discharged in May then in July she had a small procedure by her opthomalagist, because her eyes protruded more than ours I began to worry when she began rolling over, I was afraid she would rub her eye against the carpet and cause damage so the Dr. agreed and decided to do a Bi-Lateral Eyelid surgery, which went very well, it was in and out procedure and she of course came out like a champ. Then in Aug I began to notice that she was starting to take pauses when she slept, needless to say from Aug until just recently I had to take her into the ER because she would start changing colors on me. Every visit all tests labs came back showing that she had no viruses or illnesses, and even though I kept expressing my concern of her breathing all they could tell me was that she needed to see a Pulmonary Dr to have a sleep study done. We saw this Dr on Dec 16 he felt that she needed oxygen and monitors at home, but due to the holidays all orders were backed up, then on Dec 19 while we were home she took a nap and stopped breathing! Now I've taken CPR classes, it was a requirement when Javi was born, but I was in such a panic it didn't click. I remember grabbing her, grabbing my phone and running outside of my condo screaming for someone to please help her while also dialing 911. Thank GOD my neighbor from upstairs was home, his a firefighter and jumped right into action, and it so happened that Mindy,a girl that lives in our complex,was walking her dog she immediately grabbed my phone and made the call for my, she was a 911 dispatcher, I gave Tom (the firefighter) all the information he was asking about her while be gave her mouth to mouth and got her to start breathing again. I owe these 2 people everything for helping save my daughter. We got her to the ER where they got her stabilized and she was then transferred to her regular hospital. Now I know that I've done things in my past that I'm not proud of but we attend a church now that firmly believes in GOD putting people in our paths for a reason, needless to say my faith is stronger because of this incident. 
Well after she was transferred and I spoke to the dr's and explained to them that I would not let her leave the hosp without some sort of equipment to take home, they agreed to monitor her for a few days after she was exstubated to see how her stats while she slept. Let's just say they finally understood that I was not exaggerating when I said I didn't sleep anymore at night because I didn't now if her pauses were gonna last longer than usual. So on Jan 7 she had her 6th surgery, she got a tracestomy. Everything went well as I know God would allow it to be and we are now in day 8 and she's already sitting down moving around in her bed and has the biggest smile on her face, which only makes me stronger for her because she brightens up my day. Truly I believe in God's divine nature and truly believe that he loves his children unconditionally, for this I thank my God everyday for bringing me into his truth and allowing me to have the understanding I need to know that whatever plan they have in store for us it will only lead us to them more and more. So this is my first blog I know its long but I had to let you know what was going on before I could continue from here on.
looking at him now. He's very energetic, loves to be outside, and loves his cartoons, he's currently into Dora and Diego. He's definitely a mama's boy and doesn't really like to get dirty, which of course is my fault. But all around he's a really good kid he hardly ever acts up unless his sleepy or hungry, and his is the best big brother a sister could ask for. God truly has blessed me with a wonderful little boy, and if you have ever been around him his smile could melt your heart, and he only will welcome you if you have a open heart. He's very humble, if you take a toy away from him, he'll usually shrug it off and go and find another,. He does not tolerate bully's very, if you push him once he's very good about just walking away, so unlike his mother was along time ago. He has a big heart a beautiful smile, and loves to be around family. Our second child is Yesenia Araceli, but she goes by Lady, she's 14 mon old and she truly is a miracle from God. She was born with a head condition which she will have to undergo several operations to correct the shape of her head, but due to this condition she also has a different anatomy than ours. To date she has had 5 major surgeries and 1 minor one, she proves to me time and time again that you can overcome anything as long as you keep your faith in God, stay strong and keep a smile on your face. It is because of her I felt I needed to write this blog, for me personally its hard to put into words what I feel inside when it comes to her and all that she has going on. I know that there are several other families out there that are going through the same thing but I have yet to find anything that shows the progress of their child w/ pictures. When we first found that she had Craniosynistosis Cloverleaf w/ Pfeffier Syndrome, I didn't know what to think, mainly because I had never heard about it, so of course like any parent I took what the Dr's said for what it was but began to search for what it is. To give you a bit of what I now know this condition is a genetic condition, there are several types of it, it may run in your family, it may have been caused by medical things, or like my daughter it could have just been a gene that mutated while she was in the womb. Some Dr's can diagnose your baby while your pregnant w/ ultrasounds and others not until your child is a little older, again just depending on your childs case. Unfortunately the hospital I was going to at the time gave me an ultrasound very early in my pregnancy so the measurements she took didn't show any signs of problems. Now even if they would have caught it while I was still pregnant there is nothing you can do to prevent it, so the next question for me was " What's next?". I was told that she would have to undergo Cranial surgery, possibly eye surgery, and in the event that she begins to have problems she may have to have a tracestomy. Fortunately I was referred to the best Dr's I could have asked for, and the hospital that she receives all of her care is the best hospital I could have dreamed of. Since the very first Dr's appointment til now not only has my daughter received the best care, but they have treated us very well also. Now I know most of you would stay at the hospital 24/7 and I did at first, but I realized that by doing that I was not only wearing myself out, I was neglecting my son and my husband at home. Her first surgery was in March and after just 2wks I had to take her back in due to an infection near her incision sight, we ended up having to stay there for 8wks. The infection was so bad underneath her skin that it had gone down into the bone of her skull, but on the outside it only looked like she had a small scrap that had scabbed up. They had to go back in and clean out the infection and from there it felt like it was never going to get better. After this procedure she started to retain spinal fluid in her head which caused it to swell up, so she had to have a VP Schunt placed, this is a small tube that connects from her head down into her stomach so that she can dispose of it that way, then she decided she no longer wanted to take the bottle to eat like she used to, which caused her to start losing weight. They then diagnosed her as failure to thrive, which prompted the next surgery, she then had a G-Tube placement and a Fundoplication, so now her meals will be feed to her through this tube. Now if you have any questions about any of this so far please feel free to post it, I will be more than happy to explain anything I can. 
So she was discharged in May then in July she had a small procedure by her opthomalagist, because her eyes protruded more than ours I began to worry when she began rolling over, I was afraid she would rub her eye against the carpet and cause damage so the Dr. agreed and decided to do a Bi-Lateral Eyelid surgery, which went very well, it was in and out procedure and she of course came out like a champ. Then in Aug I began to notice that she was starting to take pauses when she slept, needless to say from Aug until just recently I had to take her into the ER because she would start changing colors on me. Every visit all tests labs came back showing that she had no viruses or illnesses, and even though I kept expressing my concern of her breathing all they could tell me was that she needed to see a Pulmonary Dr to have a sleep study done. We saw this Dr on Dec 16 he felt that she needed oxygen and monitors at home, but due to the holidays all orders were backed up, then on Dec 19 while we were home she took a nap and stopped breathing! Now I've taken CPR classes, it was a requirement when Javi was born, but I was in such a panic it didn't click. I remember grabbing her, grabbing my phone and running outside of my condo screaming for someone to please help her while also dialing 911. Thank GOD my neighbor from upstairs was home, his a firefighter and jumped right into action, and it so happened that Mindy,a girl that lives in our complex,was walking her dog she immediately grabbed my phone and made the call for my, she was a 911 dispatcher, I gave Tom (the firefighter) all the information he was asking about her while be gave her mouth to mouth and got her to start breathing again. I owe these 2 people everything for helping save my daughter. We got her to the ER where they got her stabilized and she was then transferred to her regular hospital. Now I know that I've done things in my past that I'm not proud of but we attend a church now that firmly believes in GOD putting people in our paths for a reason, needless to say my faith is stronger because of this incident. 
Well after she was transferred and I spoke to the dr's and explained to them that I would not let her leave the hosp without some sort of equipment to take home, they agreed to monitor her for a few days after she was exstubated to see how her stats while she slept. Let's just say they finally understood that I was not exaggerating when I said I didn't sleep anymore at night because I didn't now if her pauses were gonna last longer than usual. So on Jan 7 she had her 6th surgery, she got a tracestomy. Everything went well as I know God would allow it to be and we are now in day 8 and she's already sitting down moving around in her bed and has the biggest smile on her face, which only makes me stronger for her because she brightens up my day. Truly I believe in God's divine nature and truly believe that he loves his children unconditionally, for this I thank my God everyday for bringing me into his truth and allowing me to have the understanding I need to know that whatever plan they have in store for us it will only lead us to them more and more. So this is my first blog I know its long but I had to let you know what was going on before I could continue from here on.
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